Frequently asked questions

What is genetic counselling and who is it for?

Genetic counselling provides clear, evidence-based guidance to help you understand inherited cancer risks, assess your family history, or interpret genetic test results. It is suitable whether you are considering genetic testing, have already received a test result, or simply want to understand your family's history of cancer.

How are the consultations conducted?

All consultations are delivered remotely across the UK via secure video or telephone from the comfort of your home. Following your appointment, you will receive a comprehensive written clinic summary outlining the key points discussed and tailored recommendations for your medical team.

Do I need to have genetic testing to book a consultation?

No. Not everyone who attends a consultation will require or choose to undergo genetic testing. A consultation provides a supportive environment to review your family history, discuss potential benefits and limitations of testing, and make fully informed decisions at your own pace without pressure.

Can you help me share genetic information with my family?

Yes. Genetic findings often have implications for close family members. We provide guidance and practical support on how to communicate important genetic information to relatives, including providing formal family information letters where appropriate.

How will I receive my genetic test results?

Your results and written clinic summary will be sent to you via Mailock, a secure, encrypted email service, ensuring your personal and medical data remains completely confidential and protected.

What if I change my mind after requesting a genetic test?

If you decide not to proceed, please contact us as soon as possible. We will notify the laboratory to withhold your results and request that your sample be destroyed. However, if the laboratory has already begun processing your sample, you may still be responsible for associated laboratory costs. Please note that if the laboratory has already formally reported a result, we are ethically obligated to share it with you.

Is the genetic testing the same as the NHS?

We partner with fully accredited clinical testing laboratories that meet the exact same quality and accuracy standards recognized by the NHS. Depending on your individual circumstances, the specific gene panels or testing options offered may differ slightly to provide a more tailored approach.

What is BRCA testing via Jnetics?

Jnetics offers subsidised BRCA1 and BRCA2 testing for people of Jewish ancestry.

How do I provide my sample for testing?

A saliva kit delivered to your home with clear instructions. 

How are remote consultations conducted?

Remote consultations are usually conducted by video or telephone call. Before your appointment, you may receive a link or joining instructions, along with a request to complete forms or share relevant information. At the scheduled time, the clinician will confirm your identity, discuss your concerns, ask questions, and review any available records or test results. You can ask questions, discuss treatment options or next steps, and receive advice just as you would in an in-person appointment.

How do I provide feedback or make a complaint?

Berlin Genetics welcomes patient feedback at info@berlingenetics.co.uk to promptly resolve concerns without impacting care. All complaints are acknowledged within 48 hours.

Who can benefit from genetic counselling for hereditary cancer?

Genetic counselling can be helpful for anyone concerned that cancer may run in their family. It is particularly relevant if you or close relatives have had cancer at a young age, several family members have had the same or related cancers, one person has developed more than one primary cancer, or there is a known inherited cancer-related gene variant in the family. People with ovarian, pancreatic, male breast, metastatic prostate, or certain bowel cancers may also be offered counselling, even without a strong family history, because these cancers can sometimes be linked to inherited genetic changes.

When might this service not be appropriate for you?

 

Our genetic counselling services are designed for adult hereditary risk assessments and may not be suitable in the following circumstances:

  • Under 18 years of age: We currently provide consultations and testing only for adults aged 18 and over.

  • Previous bone marrow or stem cell transplant: A bone marrow or stem cell transplant can alter the DNA in your blood, which may affect the accuracy of standard germline genetic testing.

  • Active or high-risk infectious diseases: To meet our laboratory processing requirements, our testing options are not suitable for individuals who have been exposed to or diagnosed with highly infectious pathogens, such as HIV, Ebola, hepatitis, or similar blood-borne viruses.

If you are unsure whether testing is suitable for your circumstances, please contact us at info@berlingenetics.co.uk before booking.

 

Any more questions?